Thread: A bit of a story and a request for advice.

Originally Posted by Cujo

Tell you what mate, post them to me and I'll drop them off next time I'm up there.

Or simply post them directly to me.
Not that you're not more than welcome Cujo.

Originally Posted by Loy Toy

There is nothing I would like to do more is to drive up-country and deliver some pies to your door mate.

The next time you're in BKK, bring some with you and I'll get them delivered

Originally Posted by Cujo

Tell you what mate, post them to me and I'll drop them off next time I'm up there.

You will eat them all you Kiwi bastard.

Somehow I will get them to him including some Chrissy Mince pies.

Just got to clear the air on a few issues.

By the way Geoff is here with me at the moment.

Lovely bloke and a great friend.

Originally Posted by Loy Toy

Originally Posted by Cujo

Tell you what mate, post them to me and I'll drop them off next time I'm up there.

You will eat them all you Kiwi bastard.

Somehow I will get them to him including some Chrissy Mince pies.

Just got to clear the air on a few issues.

By the way Geoff is here with me at the moment.

Lovely bloke and a great friend.

About the pies. I will fucking not maybe.
About Jeff, yes, top bloke, tell him to drop me a line.

Incidentally, given that it's the quiet time, an update.

There's no cure, but treatment can slow down development.

The main problem is the slow but persistent deterioration on the skeletal mass. Your bones start to crumble. Your spine, in my case will eventually give out and that's not going to be fun.

My thoughts of an Africa Twin have been shelved JJ. As have any other biking dreams CFS.

So, we take the morphine and the thalidomide and the calcium and the Pregabulin and the Bactrim and the paracetamol and the Vaclovir and the liquid morphine when it hurts and we move on.

Monthly treatments at the Allan Walker Cancer Care Centre in Darwin.
A brilliant, caring, user friendly place like of which I didn't believe the public health system could possibly provide. It's the best.

The travel costs are an expensive bore but it has to be done.

Joy drives me down to Chiang Rai (2 hours)
Flight to BKK.
Flight to SIN
Flight to Darwin.
Generally get into Darwin at 05.00
Sleep for 2-3 hours then get to the clinic.
Spend most of the day getting treatment and talking to Doctors.
All good.
Walk back to my mates house, sleep.
03.00 shower and coffee and a 03.45 cab to the airport.
Finally home by 18.00 Thai time.
Job done.

An absolute pain, generally needing 2-3 days recovery.

However, next year it may only be every 3 months. That's if there's any sense in it.

By that I mean if there has been more than satisfactory progress come the end of the year we'll continue with the treatment and visits and flights and so on.

If not we won't. End of story.

No dramas but I'd rather drift off quietly at home than be flashing about on some wild whirlwind dash to try and squeeze an extra few moments of pain.

No dramas just facts.

That's the latest folks.

Thanks again for all the support and help you all gave.
It made a big difference.

pip pip

Humbling.

The words double-hard bastard spring to mind.

X 2
I hope I'm half the man if I have to face it

Originally Posted by crackerjack101

Incidentally, given that it's the quiet time, an update.

There's no cure, but treatment can slow down development.

The main problem is the slow but persistent deterioration on the skeletal mass. Your bones start to crumble. Your spine, in my case will eventually give out and that's not going to be fun.

My thoughts of an Africa Twin have been shelved JJ. As have any other biking dreams CFS.

So, we take the morphine and the thalidomide and the calcium and the Pregabulin and the Bactrim and the paracetamol and the Vaclovir and the liquid morphine when it hurts and we move on.

Monthly treatments at the Allan Walker Cancer Care Centre in Darwin.
A brilliant, caring, user friendly place like of which I didn't believe the public health system could possibly provide. It's the best.

The travel costs are an expensive bore but it has to be done.

Joy drives me down to Chiang Rai (2 hours)
Flight to BKK.
Flight to SIN
Flight to Darwin.
Generally get into Darwin at 05.00
Sleep for 2-3 hours then get to the clinic.
Spend most of the day getting treatment and talking to Doctors.
All good.
Walk back to my mates house, sleep.
03.00 shower and coffee and a 03.45 cab to the airport.
Finally home by 18.00 Thai time.
Job done.

An absolute pain, generally needing 2-3 days recovery.

However, next year it may only be every 3 months. That's if there's any sense in it.

By that I mean if there has been more than satisfactory progress come the end of the year we'll continue with the treatment and visits and flights and so on.

If not we won't. End of story.

No dramas but I'd rather drift off quietly at home than be flashing about on some wild whirlwind dash to try and squeeze an extra few moments of pain.

No dramas just facts.

That's the latest folks.

Thanks again for all the support and help you all gave.
It made a big difference.

pip pip

One small but important point you might like to start doing something about is thinking about your home, and how your missus will manage if your mobility does become compromised. Thinking about things like stairs, wash facilities etc.

This is all thoroughly depressing. Think will go and find some pictures of cats.

all the best.

Originally Posted by nidhogg

One small but important point you might like to start doing something about is thinking about your home, and how your missus will manage if your mobility does become compromised. Thinking about things like stairs, wash facilities etc.

A very good point and not depressing at all, just realistic.
Yes, I have thought about that and I think it'll work out OK.

A very humbling tale.

Best of luck mate, a real man. From Auroria.

Originally Posted by Fatter than Chuck Norris

Joy drives me down to Chiang Rai (2 hours)
Flight to BKK.
Flight to SIN
Flight to Darwin.
Generally get into Darwin at 05.00
Sleep for 2-3 hours then get to the clinic.
Spend most of the day getting treatment and talking to Doctors.
All good.
Walk back to my mates house, sleep.
03.00 shower and coffee and a 03.45 cab to the airport.
Finally home by 18.00 Thai time.
Job done.

24 hour turn around ?

Phaaark.

keep up the good spirits mate.

Originally Posted by Cujo

Originally Posted by Loy Toy

Originally Posted by Cujo

Tell you what mate, post them to me and I'll drop them off next time I'm up there.

You will eat them all you Kiwi bastard.

Somehow I will get them to him including some Chrissy Mince pies.

Just got to clear the air on a few issues.

By the way Geoff is here with me at the moment.

Lovely bloke and a great friend.

About the pies. I will fucking not maybe.
About Jeff, yes, top bloke, tell him to drop me a line.

Minor clarification needed.

Geoff - tough bloke, going through a difficult time with dignity, all round good fella.

Jeff - serial liar and poster of scat. All round cvnt.

Just sayin.

Originally Posted by kingwilly

Originally Posted by Cujo

Originally Posted by Loy Toy

Originally Posted by Cujo

Tell you what mate, post them to me and I'll drop them off next time I'm up there.

You will eat them all you Kiwi bastard.

Somehow I will get them to him including some Chrissy Mince pies.

Just got to clear the air on a few issues.

By the way Geoff is here with me at the moment.

Lovely bloke and a great friend.

About the pies. I will fucking not maybe.
About Jeff, yes, top bloke, tell him to drop me a line.

Minor clarification needed.

Geoff - tough bloke, going through a difficult time with dignity, all round good fella.

Jeff - serial liar and poster of scat. All round cvnt.

Just sayin.

Ah, right my bad. I knew that. I'll blame the brown liquid.

^ Crikey....I'd never heard about that one.

Crackerjack.....are you taking turmeric regularly ?

Originally Posted by GracelessFawn

CJack, a good friend of mine ultimately got better with this alternative cure. Her prognosis wasn't very good when she stopped radiation therapy coz she was running out of cash and out of property to sell for the treatments. She swears that this alternative route cured her. I believe her. She was suppose to be dead six years ago.

Thanks for that Grace, an interesting read.

Originally Posted by Latindancer

Crackerjack.....are you taking turmeric regularly ?

Errrr, No, I don't think so.

https://foodrevolution.org/blog/turmeric/

Well given that it's growing in every garden in our village, including ours it would seem silly not to give it a go.

While far more expensive some recommend saffron , a controlled subsyance in Canada.

It is sold in Bangkok avoid the Tirkish and Iranian stale stock La Mancha steep 4-12 stamen , also cures flatulence insomnia and cuases laughter I wrote an article on it in Cornwall, The Saffron Walden and French while ok for coloration is less potent than La Mancha , brought by the Moors yonks ago and sold in every Spanish corner shop

Originally Posted by david44

While far more expensive some recommend saffron , a controlled subsyance in Canada.

It is sold in Bangkok avoid the Tirkish and Iranian stale stock La Mancha steep 4-12 stamen , also cures flatulence insomnia and cuases laughter I wrote an article on it in Cornwall, The Saffron Walden and French while ok for coloration is less potent than La Mancha , brought by the Moors yonks ago and sold in every Spanish corner shop

Errr, right. Thanks for that.

I thought this was quite good.

How are you doing CJ?

I hope your health is improving bro.