Incidentally, given that it's the quiet time, an update.

There's no cure, but treatment can slow down development.

The main problem is the slow but persistent deterioration on the skeletal mass. Your bones start to crumble. Your spine, in my case will eventually give out and that's not going to be fun.

My thoughts of an Africa Twin have been shelved JJ. As have any other biking dreams CFS.

So, we take the morphine and the thalidomide and the calcium and the Pregabulin and the Bactrim and the paracetamol and the Vaclovir and the liquid morphine when it hurts and we move on.

Monthly treatments at the Allan Walker Cancer Care Centre in Darwin.
A brilliant, caring, user friendly place like of which I didn't believe the public health system could possibly provide. It's the best.

The travel costs are an expensive bore but it has to be done.

Joy drives me down to Chiang Rai (2 hours)
Flight to BKK.
Flight to SIN
Flight to Darwin.
Generally get into Darwin at 05.00
Sleep for 2-3 hours then get to the clinic.
Spend most of the day getting treatment and talking to Doctors.
All good.
Walk back to my mates house, sleep.
03.00 shower and coffee and a 03.45 cab to the airport.
Finally home by 18.00 Thai time.
Job done.

An absolute pain, generally needing 2-3 days recovery.

However, next year it may only be every 3 months. That's if there's any sense in it.

By that I mean if there has been more than satisfactory progress come the end of the year we'll continue with the treatment and visits and flights and so on.

If not we won't. End of story.

No dramas but I'd rather drift off quietly at home than be flashing about on some wild whirlwind dash to try and squeeze an extra few moments of pain.

No dramas just facts.

That's the latest folks.

Thanks again for all the support and help you all gave.
It made a big difference.

pip pip